Q: How can I manage my child's complex febrile seizures, especially the fear of them happening at night?

This post is a dramatization of a question and answer session experienced by our actual medical reviewers. Please note that this content is for informational purposes only and does not constitute medical advice. Always consult with a qualified healthcare professional for any health concerns or before making any decisions related to your health or treatment.

Question: My three-year-old recently had a complex febrile seizure that lasted nearly 30 minutes and was only stopped with emergency medication. We now have rescue medication at home, but I am terrified of another seizure happening while he's asleep and we don't notice. What would happen if a prolonged seizure isn't stopped? How do other parents manage this risk and their anxiety, especially at night?

Answer: I’m so sorry you had to go through such a terrifying experience with your child’s seizure. A prolonged seizure of 25 to 30 minutes would be frightening for anyone, and it’s completely natural to worry about it happening again—especially at night.

From what you’ve described, your child experienced a complex febrile seizure, which can last longer than simpler ones and sometimes requires intervention like midazolam to stop. These seizures carry a higher chance—around 30 to 50 percent—of returning, so it’s understandable that you’re on edge. The important thing to remember is that permanent harm from febrile seizures is rare, and you did exactly the right thing by seeking emergency care.

It’s also reasonable to have concerns about how to monitor your child at night. I’ve seen families use video monitors (e.g. SAMi Sleep Activity Monitor) or special sensors designed to detect unusual movements (e.g. MP5 Seizure Monitor For Children), and some parents choose to keep a closer eye on their children during fevers by letting them sleep in the same room. These steps can offer peace of mind without having to stay right beside your child every single night.

If your child does develop a fever, keeping them well-hydrated and using age-appropriate doses of acetaminophen or ibuprofen can help bring the fever down. Should a seizure occur, having midazolam on hand with clear instructions on when and how to use it is essential. Most doctors recommend administering it if a seizure lasts more than five minutes, then calling for emergency help if it doesn’t stop.

Even though this is a scary condition, I want you to know that many children outgrow febrile seizures by the time they start school. You’re already doing so much to protect your child by educating yourself and preparing for any future emergencies. If you haven’t already, it might be helpful to create a written seizure action plan with your healthcare provider and consider meeting with a pediatric neurologist to get more personalized advice.

Please remember that I’m sharing general guidance based on my medical experience. Your own healthcare team knows your child’s situation best, so keep working closely with them for tailored recommendations. It sounds like you’re doing an amazing job, and I’m hopeful your child will continue to grow and thrive despite these challenges.

For extra peace of mind and clear guidance when tracking your child's symptoms, the FeverCoach app is always there to help.

https://fevercoach.us